Christian Living

Stollery Stay, G-tube, #HoldAADLAccountable

Lilly and I spent last weekend our local Children's Hospital, The Stollery for pain issues. Lilly's chronic pain was higher than usual and she was admitted to try to get better control. The x-rays showed that nothing has changed and the pain was muscular. Lilly also started a new med while admitted and did not react to… Continue reading Stollery Stay, G-tube, #HoldAADLAccountable

Christian Living

A Convaid Cruiser Stroller For Lilly

This post contains sponsored links. The opinion that I expressed are mine alone. In the past 2 years Lilly has sadly slowly out grown our Bob Revolution stroller that we invested in once we knew Lilly had long-term mobility issues. The Bob was our go to equipment for long outings like shopping, going to the… Continue reading A Convaid Cruiser Stroller For Lilly

Christian Living

Medically Fragile Child: When you expect the news but it still stings

The Lilly people see in public; going to school, going to church, and in pictures is the healthy Lilly. Sometimes she is tired, but over all she is at her best. There's a Lilly that only the ER staff, her paediatrician and specialist know, the medically fragile side of her; the complex and often unexplained… Continue reading Medically Fragile Child: When you expect the news but it still stings