When you live in the day-to-day life of regression it can be easy to lose hope in your child making gains physically. Since Lilly was born we have made physical and occupational goals to work on. As a baby it was things like learning to sit up and once she conquered that we would move onto… Continue reading Through A Child’s Eyes
Lilly's is in the beginning of her journey with powered wheelchairs. Last Thursday was her first day driving. Did she take off on her therapist. Read to find out!
Lilly and I spent last weekend our local Children's Hospital, The Stollery for pain issues. Lilly's chronic pain was higher than usual and she was admitted to try to get better control. The x-rays showed that nothing has changed and the pain was muscular. Lilly also started a new med while admitted and did not react to… Continue reading Stollery Stay, G-tube, #HoldAADLAccountable
This post contains sponsored links. The opinion that I expressed are mine alone. In the past 2 years Lilly has sadly slowly out grown our Bob Revolution stroller that we invested in once we knew Lilly had long-term mobility issues. The Bob was our go to equipment for long outings like shopping, going to the… Continue reading A Convaid Cruiser Stroller For Lilly
The Lilly people see in public; going to school, going to church, and in pictures is the healthy Lilly. Sometimes she is tired, but over all she is at her best. There's a Lilly that only the ER staff, her paediatrician and specialist know, the medically fragile side of her; the complex and often unexplained… Continue reading Medically Fragile Child: When you expect the news but it still stings
This week had been a whirl wind around here. We had The Banquet Of Hope to attend, Daddy's own medical appointment, (not serious,) an Allergist appointment and we went to pick up Lilly's new wheelchair! Pick up day had finally arrived 🙂 Three years ago I wrote a post Saying Yes To A Wheelchair. It was… Continue reading Lilly’s New #Wheelchair
Around Christmas time there are a bunch of fun activities around town. Often we have to pass them up because the kids are sick or it's too much for Lilly's brain or it's too cold. This year when the Holiday Train rolled through town The Hubby and I had our usually debate, do we go… Continue reading A Christmas Surprise