Christian Living

Through A Child’s Eyes

When you live in the day-to-day life of regression it can be easy to lose hope in your child making gains physically. Since Lilly was born  we have made physical and occupational goals to work on. As a baby it was things like learning to sit up and once she conquered that we would move onto… Continue reading Through A Child’s Eyes

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Christian Living

Stollery Stay, G-tube, #HoldAADLAccountable

Lilly and I spent last weekend our local Children's Hospital, The Stollery for pain issues. Lilly's chronic pain was higher than usual and she was admitted to try to get better control. The x-rays showed that nothing has changed and the pain was muscular. Lilly also started a new med while admitted and did not react to… Continue reading Stollery Stay, G-tube, #HoldAADLAccountable

Christian Living

A Convaid Cruiser Stroller For Lilly

This post contains sponsored links. The opinion that I expressed are mine alone. In the past 2 years Lilly has sadly slowly out grown our Bob Revolution stroller that we invested in once we knew Lilly had long-term mobility issues. The Bob was our go to equipment for long outings like shopping, going to the… Continue reading A Convaid Cruiser Stroller For Lilly

Christian Living

Medically Fragile Child: When you expect the news but it still stings

The Lilly people see in public; going to school, going to church, and in pictures is the healthy Lilly. Sometimes she is tired, but over all she is at her best. There's a Lilly that only the ER staff, her paediatrician and specialist know, the medically fragile side of her; the complex and often unexplained… Continue reading Medically Fragile Child: When you expect the news but it still stings