A few years ago, I wrote a post called Winter Boots and AFOs (which still gets a lot of traffic, but it's outdated). Lilly's got her first pair of AFOs at age two, and it was terrifying! How do you find shoes to fit these things? I began to hate shoe shopping. Now that I have had to… Continue reading Let’s Talk About Afo’s And Shoes
When The Mighty first came out, I loved their posts. It was like someone was writing my deepest thoughts and it seemed to normalize what we were going through. Then slowly, I kept coming across posts that didn't sit well with me. It was then that I decided to unfollow The Mighty and I wrote a blog post on my… Continue reading Why I Am Following The Mighty Again
AAC stands for Augmentative and Alternative Communication. It is an umbrella term for communication methods that are used to supplement, and/or replace speech or writing. There are many different methods available and we have tried a few. Over the last nine years, we have tried Picture Exchange Communication System (PECS) cards, communication boards, Pragmatic Organization Dynamic… Continue reading AAC Has Always Been The Goal
At a young age, we knew that Lilly would have an up hill battle with vocalizing words. One of the areas of the brain that was damaged was the area that controls communication from the brain to the muscles. There are many muscles in the mouth, the face, the tongue, and throat that enable a person to talk. By… Continue reading Communication, Not Vocalization
Lilly is one of 17 million people in the world living Cerebral Palsy (CP). This is our ninth year of celebrating World Cerebral Palsy Day. Each year, I plan for an amazing way to celebrate World CP Day, but often life gets in the way, and my plans fall by the wayside. If you have been following this… Continue reading World Cerebral Palsy Day; October 6, 2018
Writing the Lilly Through The Valley posts have made me really step back to look back at my earlier beliefs and dreams. During a recent phone call with my mom, I saw the person I used to be, and the person I have become through the nine years of our journey. The balance between medical versus therapy life is… Continue reading Balancing Medical With Therapy Life
In the next little while, I will be sharing some posts on how I set things up for Lilly to succeed. The results we see today are actually the fruit of early intervention. People often ask me if Early Intervention works, and the answer is a resounding yes! Both of my children have had some sort of early intervention, Lilly's began at four months. At that time,… Continue reading Early Intervention: It Works!